2- Duchenne Muscular Dystrophy takes its victims before the late twenties.Tim got in some college and some life work.
3- He was always in the hospital for infection after infection, but this time , there was nothing they could do , she Dee ,the mother, had no time to think,no time to prepare.
4.And so she crawled in bed and held him like she did when he was born and less than an hr later, he floated peacefully away .
5.All her posts were full of shock .He's Gone I cannot believe it .
6. Then Dee , the mother became angry at the hospital, the disease and anything that left her ALONE.
7.The mother began to complain to anyone who was a captive audience
8- Then Dee the mother talked about her overwhelming grief, her feeling sorry for herself , no job, having to move.She was no longer stunned and angry she was scared.
9 .- About 6 months past, and Dee his mother starting educating and rallying and supporting others with this disease. She kept a list of ages ..How long did they make it ?/
10.She decided to stop crying and feeling sorry for herself and this plucky lady who pushed around a wheelchair all the way to Tim's college, moved and started looking for a JOB.
11- Where had she spent most of her time ??
12.- Why at medical centers, hospitals. That's where she would go Adventist Hospital
13. HE was by her side the whole time , but there she felt safe and happy with HIM by her side !!!
Duchenne muscular dystrophy (DMD) is a recessive X-linked form of muscular dystrophy, affecting around 1 in 3,600 boys, which results in muscle degeneration and eventual death.[1] The disorder is caused by a mutation in the dystrophin gene, the largest gene located on the human X chromosome, which codes for the protein dystrophin, an important structural component within muscle tissue that provides structural stability to the dystroglycan complex (DGC) of the cell membrane. While both sexes can carry the mutation, females rarely exhibit signs of the disease.
Her son sounds like a wonderful person.
ReplyDeleteWhat a story! You should write a book about them, or she should.
ReplyDeleteThis story is both sad and inspiring. Thanks for sharing.
ReplyDeleteVery informative and inspiring. It can take a while to move beyond grief and shock. A good lesson.
ReplyDelete